Category Archives: (9) Advocacy

Recliners

Upon leaving the hospital, we were worried about how we would manage at home. It seemed that everyone I talked to, and everywhere we looked on the internet people professed at the need for an electric recliner – for both lounging but also for sleeping. We were so convinced that we tried to rent one,… Read More »

An engaged patient needs and engaged caregiver

It was never more clear than when I was in the hospital, that I needed my husband, and I needed him to be just as engaged in my care as I was (or perhaps even more so). There were several times when things where not quite right, but I was not in any shape to… Read More »

Hospital days 3 and 4 and coming home …

At day 3 (Saturday), things started to look a little better. I was moved over to the window. The room I was in was the tiniest of hospital rooms. The single room I had on my last stay was almost the same size as the double room I was in for days 3 and 4.… Read More »

Surgery – Initial impressions and day 2 drama

The first time I looked down at my new breasts (day after surgery, during the first dressing change), my first thought was that they were a little smaller than I expected. Now, I had told me surgeons that I’d be happy with about a 20% reduction in size, but somehow, I didn’t really internalize what… Read More »

Pathology – What it says

On Thursday I received the first of the surgical pathology reports. I’ll get another at the end of the month after my bilateral mastectomy. This one reported on nine tissue samples that were taken on my November 19th surgery. First and foremost, my nodes remain “negative for carcinoma”. In addition, the sub-nipple biopsy also indicates… Read More »

Doing what I can to improve the experience for others

On Wednesday, November 19th I was wheeled around to various departments as part of my pre-surgery preparation. As part of this, I was seen by mammography, where they placed three wires in my breasts. These wires were guides for the surgeons – to show them where each of my tumor were. When I returned from… Read More »

Hoping I have rabbit cancer …

I follow Katie Ford Hall’s blog. In a post titled Birds and Rabbits she summarizes a portion an article by Christie Aschwanden on the Case Against Early Detection – where Cancer is categorized into four types. I’ll quote Katie here: Here’s where she gets brilliant.  She describes four types of cancer: The Turtle – a cancer so slow-growing that… Read More »

Flyin’

Today will be my first post-surgery flight. I didn’t leave it too long  … it has only been a week since surgery. In the surgery, I had a sentinel lymph node dissection (SLND) on both sides (bilateral). If I were to listen to the rhetoric on the various breast cancer support group sites, I should… Read More »