Tag Archives: ePatient

An engaged patient needs and engaged caregiver

It was never more clear than when I was in the hospital, that I needed my husband, and I needed him to be just as engaged in my care as I was (or perhaps even more so). There were several times when things where not quite right, but I was not in any shape to… Read More »

Hospital days 3 and 4 and coming home …

At day 3 (Saturday), things started to look a little better. I was moved over to the window. The room I was in was the tiniest of hospital rooms. The single room I had on my last stay was almost the same size as the double room I was in for days 3 and 4.… Read More »

Surgery – Initial impressions and day 2 drama

The first time I looked down at my new breasts (day after surgery, during the first dressing change), my first thought was that they were a little smaller than I expected. Now, I had told me surgeons that I’d be happy with about a 20% reduction in size, but somehow, I didn’t really internalize what… Read More »

Doing what I can to improve the experience for others

On Wednesday, November 19th I was wheeled around to various departments as part of my pre-surgery preparation. As part of this, I was seen by mammography, where they placed three wires in my breasts. These wires were guides for the surgeons – to show them where each of my tumor were. When I returned from… Read More »

A surgeon who understands …

We realized that we had not stopped by the tree before my surgery last week. Today, we stopped briefly at the tree. I found myself looking up and reflecting (the picture also shows how my hair is growing back!) … Unlike many of the other eucalyptus trees in the area, this one hasn’t lost much of… Read More »

Ya, no …

Ya, no … That is pretty much what I thought when the resident on call suggested a catheter with a pee bag attached to my leg for the next week or so. I don’t think she really heard me right. I said I was having difficulty urinating, but I am still doing it! There is… Read More »

A photo shoot and getting ready for surgery

Never in my life did I even imagine that I would be naked in a home photo studio in Berkeley California (well, maybe not actually Berkeley, rather Albany, which felt a lot like Berkeley) … anyways, it isn’t something I ever thought that I would do, and yet I did it. Cancer has certainly meant… Read More »

‘For now, the chemo is done …

Yesterday was my last scheduled chemotherapy – taxol. We went to the tree before my first appointment and took the requisite pictures. I had some fun with it. Towards the end of my treatment, the chemo nurses sang the chemo song: http://vimeo.com/110530951 A tear or two did drop from my eyes as they were singing and… Read More »

Social media and patient engagement – #medx

Recently, I noticed a transition in my face-to-face support group – in that I’ve transition from the newbie going through treatment to the experienced breast cancer patient who can answer various questions about chemotherapy. A friend sent me a book (which I recommend ‘Crazy Sexy Cancer Tips‘), which has some great advice for those with… Read More »