Tag Archives: mets

Reclaiming pink …

An acquaintance with metastatic disease is having a personal fundraiser and in her invitation she talked about ‘reclaiming pink’. This reminded me very much about the work we do as Unitarian Universalists of reclaiming religious language – a message that resonated very strongly with me and allows me to call my local congregation a “church” even… Read More »

Temper tantrums

Yesterday, I felt like a two year old having a temper tantrum. I don’t wanna! I screamed to myself as tears dripped down my eyes. I got a call from the surgery scheduler. They were awaiting word from my oncologist about chemo scheduling. After talking they conferred with my oncologist, I got word that the plan… Read More »

Breast cancer awareness isn’t about pink ribbons

Until I was diagnosed with breast cancer, I was not aware of it! October came and went with lots of pink ribbons, pink running shoes, TV commercials about various breast cancer charities, dumb games on Facebook, and requests for donations to some unknown charity with breast cancer in the title at the grocery store. None… Read More »

The conversation project – and some end-of-life thoughts #medx

One of the bits of recommended “reading” in the Patient Engagement Design MOOC I’m taking is about The Conversation Project. The video talks about the importance of having conversations about what you want your end-of-life to look like. So that when your care givers are facing decisions, they know what you really want. I’m not sure… Read More »

My Buddha Belly

It may sound dumb but one of my biggest worries about not getting reconstruction is that I’ll look funny. I’ll have a flat chest but a buddha belly. I’m more scared about the buddha belly than I am about the flat chest. I know my choice for surgery. I know I ‘want’ a double-mastectomy. Want… Read More »