Tag Archives: sharing resources

Flyin’

Today will be my first post-surgery flight. I didn’t leave it too long  … it has only been a week since surgery. In the surgery, I had a sentinel lymph node dissection (SLND) on both sides (bilateral). If I were to listen to the rhetoric on the various breast cancer support group sites, I should… Read More »

BCC Connections Annual Conference

Yesterday I attended my first breast cancer conference – hosted by  Bay Area Cancer Connections. They had several really good speakers. I tweeted the sessions I attended (Storify embedded below). First I should begin by saying it was a good conference. I learned a few things, the venue was great, the food was great, and… Read More »

Social media and patient engagement – #medx

Recently, I noticed a transition in my face-to-face support group – in that I’ve transition from the newbie going through treatment to the experienced breast cancer patient who can answer various questions about chemotherapy. A friend sent me a book (which I recommend ‘Crazy Sexy Cancer Tips‘), which has some great advice for those with… Read More »

The conversation project – and some end-of-life thoughts #medx

One of the bits of recommended “reading” in the Patient Engagement Design MOOC I’m taking is about The Conversation Project. The video talks about the importance of having conversations about what you want your end-of-life to look like. So that when your care givers are facing decisions, they know what you really want. I’m not sure… Read More »

The more you know the less you want to know

This NPR clip (short 4 minute clip) talks about how colleagues of women diagnosed with breast cancer react regarding their personal health – http://www.npr.org/2014/08/13/340005026/how-a-co-worker-s-breast-cancer-diagnosis-affects-colleagues In the brief podcast (I encourage you to listen to it), it talks about how knowing a colleague has been recently diagnosed with breast cancer, reduces the likelihood of women to get… Read More »

Significance of dates and getting ready for chemo

It is funny how special dates have meaning – and how we know what dates are good dates and which are not. I wanted to strongly avoid starting chemo on July 1st, as I did not want every Canada Day to be a reminder. Instead, the date aligns with a date that already has meaning… Read More »

And so it begins

The slow start to yesterday meant that I didn’t get my second blog post written. I shall try and get caught up today (before I completely forget what I was going to write about), but no guarantees. So yesterday we received some mixed news about the pathology. Specifically, the cancer in both breasts is IDC (invasive ductal… Read More »