Tag Archives: Writing

Huh, what day is it?

I’ve managed to completely lose track of what day it is. I felt that Tuesday was the weekend, and then yesterday (Tuesday) I took my meds labelled Wednesday. The change in chemo day certain is part of my confusion – because my routines are all changed but still. I shouldn’t have to check my phone… Read More »

Reclaiming pink …

An acquaintance with metastatic disease is having a personal fundraiser and in her invitation she talked about ‘reclaiming pink’. This reminded me very much about the work we do as Unitarian Universalists of reclaiming religious language – a message that resonated very strongly with me and allows me to call my local congregation a “church” even… Read More »

Oh where has my mind gone?

In one moment, I feel like I’m thinking clearly. I’m reading and reflecting. I feel connected. In the next moment, I realize just how unconnected my mind is. This chemo brain is infuriating! I ventured out today – unable to drive because of the cognitive dissonance that is getting worse with each dose of taxel… Read More »

Thanks for the hugs

First I want to say ‘thanks for the hugs’. I received several emails and virtual hugs after my post yesterday. I really appreciate the support – and often when I get into one of my down moods, I just need a little encouragement. I know that I tend to ‘catastrophize’  – that is, to imagine… Read More »

Another reflection on chemo brain

[Free Webinar Wednesday, Sept 17, 9am PDT, noon EDT on chemo brain – http://www.lbbc.org/Events/2014-09-17-Chemobrain] A great blog post by Anne Boyer crossed my twitter stream today. In it she talks about her experience with chemo brain after her first cycle of AC chemo. I encourage you to read her post before continuing with this one, as… Read More »

One more chemo day done!

Today was a busy day up at Stanford. I had an oncology appointment, chemo infusion, and then a workshop on make-up (sponsored by Look good feel better). I’ll talk about the first two here, and the latter in a separate blog post. The good news from the oncology appointment is that the thing my oncologist felt… Read More »

When I don’t blog … and an update

When I don’t blog, please don’t worry. Take a look at rjh.goingeast.ca to see if I’m blogging over there (I have been writing about patient engagement more generically on my academic blog). I am touched that so many people are reading my blog – and that they worry when I don’t write. Writing everyday is… Read More »